Quebec tables bills to make sharing health information more efficient
Quebec wants to promote information sharing between patients, their caregivers, managers and researchers, both public and private.
Health Minister Christian Dubé tabled Bill 19, described as a "mammoth" bill, on Friday, which amends 27 laws in Quebec.
He said the bill is part of a strategy to transform the health-care system to make it more "efficient and humane."
If passed, Bill 19 would remove barriers to information sharing. A patient would not only be able to see his or her own information but also know who has seen it.
Dubé also wants managers to have access to 'timely' information so they can make the right choices, which he said was a weakness in the system during the pandemic.
"We saw that ... particularly at the beginning of the pandemic, the lack of real-time information was critical," Dubé said in a news conference. "There is information that we received two or three weeks late, and I think we can't go through that again. We really need to catch up on the information gathering."
The minister aims to simplify access to information for researchers in the public system, in order to promote developing innovative treatments.
For researchers in the private sector, Quebec wants to create an organization, a "trusted third party," responsible for receiving and processing their requests.
A patient could refuse to have his or her data accessible to external researchers.
PROTECTING PERSONAL DATA
Quebec said it is committing to keeping citizens informed of any anticipated uses of their information, in addition to applying mechanisms to protect that information. The province would penalize anyone who accesses documents without the right to do so.
A departmental health information officer would be appointed to be accountable for decisions made in relation to access granted. The Access to Information Commission would have the power to conduct investigations.
At a news conference on Friday, Quebec Solidaire health spokesperson Vincent Marissal expressed concern that personal information could be used for private purposes.
"We will be against any form of commercialization or even sharing of personal information that belongs to Quebecers," he said.
Dubé said the sale of health or social services information will be prohibited. He also gave himself one year after the adoption of the bill to make the changes provided for in it.
This is the third bill in a few weeks that the Legault government has introduced related to health care, following bills about doctors' pay and youth protection.
"These are three bills that the government says it is determined to support, but it (...) is going to have difficulty carrying out the consultations, doing the clause-by-clause study before the October 3, 2022 election," said Liberal party house leader André Fortin.
"For us, the government has put itself in a rather precarious position at this level."
-- This report by The Canadian Press was first published in French on Dec. 3, 2021.
CTVNews.ca Top Stories
BREAKING Iran fires air defence batteries in provinces as explosions heard near Isfahan
Iran fired air defence batteries early Friday morning as explosions could be heard near a major air base near Isfahan, raising fears of a possible Israeli strike following Tehran's unprecedented drone-and-missile assault on the country.
American millionaire Jonathan Lehrer denied bail after being charged with killing Canadian couple
American millionaire Jonathan Lehrer, one of two men charged in the killings of a Canadian couple in Dominica, has been denied bail.
Nearly half of China's major cities are sinking, researchers say
Nearly half of China's major cities are suffering 'moderate to severe' levels of subsidence, putting millions at risk of flooding especially as sea levels rise.
Prince Harry formally confirms he is now a U.S. resident
Prince Harry, the son of King Charles III and fifth in line to the British throne, has formally confirmed he is now a U.S. resident.
Judge says 'no evidence fully supports' murder case against Umar Zameer as jury starts deliberations
The judge presiding over the trial of a man accused of fatally running over a Toronto police officer is telling jurors the possible verdicts they may reach based on the evidence in the case.
Health Canada to change sperm donor screening rules for men who have sex with men
Health Canada will change its longstanding policy restricting gay and bisexual men from donating to sperm banks in Canada, CTV News has learned. The federal health agency has adopted a revised directive removing the ban on gay, bisexual and other men who have sex with men, effective May 8.
Colin Jost names one celebrity who is great at hosting 'Saturday Night Live'
Colin Jost, who co-anchors Saturday Night Live's 'Weekend Update,' revealed who he thinks is one of the best hosts on the show.
Sports columnist apologizes for 'oafish' comments directed at Caitlin Clark. The controversy isn't over
A male columnist has apologized for a cringeworthy moment during former University of Iowa superstar and college basketball's highest scorer Caitlin Clark's first news conference as an Indiana Fever player.
'Shopaholic' author Sophie Kinsella reveals brain cancer diagnosis
Sophie Kinsella, the best-selling author behind the 'Shopaholic' book series, has revealed that she is receiving treatment for brain cancer.